Arizona parents turn donated van into charity fighting inherited blindness
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This story is aggregated from The Times of India (timesofindia.indiatimes.com). Full reporting rights and copyright belong to the primary publisher.
After their son Luke was diagnosed with Bardet-Biedl syndrome, an Arizona couple established A Race Against Blindness. The charity has since raised over $6.1 million for research into inherited retinal diseases. They also organized a sweepstakes featuring a custom adventure van, ...
After their son Luke was diagnosed with Bardet-Biedl syndrome, an Arizona couple established A Race Against Blindness. The charity has since raised over $6.1 million for research into inherited retinal diseases. They also organized a sweepstakes featuring a custom adventure van, significantly increasing awareness. Their contributions support groundbreaking gene therapy aimed at BBS1, and funding has expanded to multiple inherited retinal condition studies.
Original Source
https://timesofindia.indiatimes.com/world/us/arizona-parents-donated-an-adventure-van-to-launch-a-charity-inspired-by-their-sons-rare-disease-the-organisation-now-reports-6-1-million-in-research-grants-to-help-tackle-inherited-blindness/articleshow/135390372.cms
